Due to the unilateral sanctions imposed against Iran by the United States and its allies, certain medicines are no longer imported into the country and this has endangered the lives of many patients especially those suffering from rare diseases.
“My son has had the disease called cystinosis since he was four months old. This is a genetically inherited disease. He goes to kidney dialysis three times a week. Now his kidneys are failing and need a transplant. His kidney failure has caused his bones to start growing crooked,” an Iranian citizen told Press TV.
“Both my sons have MPS (mucopolysaccharidosis) type II. We learned of their disease about three years ago. My sons must each take two shots [of medicine] every week for the rest of their lives. In 2010, the price was USD5,800 per shot. I just cannot afford it,” an Iranian citizen said.
“The foremost goal of rare diseases congress is to assist the patients. People with rare diseases are considered to be in critical need. Our aim is to make sure we are up to date about all types of rare diseases and scientific updates,” Ali Davoudian, the Director of the Iranian Congress on Rare Diseases told Press TV.
“The sanctions that have been forced upon us have hurt many people in need of medicine. Some have even lost their lives,” Davoudian pointed out.